Thursday, March 31, 2011

Noah's first office visit with Lynne

Today, David and I took Noah for his appointment with his rehab doctor. There was no "real" reason for our visit, but these are required to update prescriptions and the like. It was a cold rainy day here, and Noah had goosebumps on his arms. He got weighed(gained 2lbs...157) and is scheduled to have a botox treatment at the end of May to help loosen the tightness of his arms and hands. We bit the bullet and asked to get a permit for closer parking for Noah...on days like today, even though we temporarily parked our car in a disabled spot, I had to move our car during the appointment. We learned some VERY sad news today, though. Noah's rehab doctor, Dr. Thorogood, will be moving out of state in the next number of months. We saw her assistant, Lynne, today, and she told us of the doctor's departure. Dr. Thorogood has held a very special place in my heart, especially, from the beginning of Noah's injury. She listened to me, questioned what I questioned, changed things that I wanted changed and couldn't get changed with any other doctor and aligned with our hope for Noah...the thought of seeing another doctor would never occur to me. She will administer Noah's botox in May, but that will be the last time we see her. We love her assistant, but she is not a full fledged doctor, so we would have appointments with her, but also be required to have some appointments with the rehab doctor. Please pray that there will be a great doctor to come and take her place...we were told there is no one at this point...our God is able to do exceedingly, abundantly, more than we could ask, think, or hope for...we shall see.

Tuesday, March 22, 2011

The start of Noah's Blog

Hi, everyone! The idea to start a blog for Noah has been one that I have thought about for a while. I want to personally thank Kelly Palmer for her labor of love to our family by posting Noah's updates on our church website for almost the last 4 years! I have so appreciated all the time and effort that went into seeing that people were informed about Noah's progress, in addition to all of her other responsibilities at church. I am hopeful that this will be a bit easier for her as well as for me to to let you all know about Noah's progress...I will try to write whenever something happens or I have a thought...and not have it slip away before I write something many days later(hey...a couple hours later can be risky sometimes). I'm not sure about my style, but I am who I am...hope you will come back and join me when you can!

The history of Noah's injury is on our church's website:
It encompasses almost 4 years of updates, so it is rather lengthy...but to those who don't know Noah or our family, they may prove very helpful.

I am trying very hard to prepare Noah for his eye gazing computer by asking him to look at various things. I have asked him to look at the calendar next to his bed for a long time and he is now very quick to look when I ask him. I asked him to look at his tv the other day. He looked at the calendar. Well, at least he's remembering that the calendar was the thing I have been asking him to look at for a while... expanding our data base will be a little more work than I had thought...but we will get there. Repetition is key for Noah...and I am seeing that it really DOES work. I am remembering that it wasn't that long ago that Noah would not look at ANYTHING besides people when I asked him to look at things ...have to believe that his ability to connect is healing, as evidenced by his looking around at ANYTHING when I ask him to look at things, now...he is at least TRYING...God is good and my boy is too!!
Noah has been LAUGHING UP A STORM early in the mornings, lately. Not just a little laugh. No, the kind of laughter that is so hard that he has to catch his breath and one laugh goes on for multiple seconds. It just leaves me wondering what in heaven's name he could be laughing about. Later in the day after the biggest episode, I reminded Noah that when he starts talking or can tell me on his computer, I want him to remember this day and let me know what he was laughing about...he started laughing hard , again....toooooo funny!!
Thanks for checking in with us, the Lord bless you this week with favor and opportunity!!